Millie and Louis were overjoyed to learn they were expecting twins. But their happiness turned into deep sadness when doctors told them some terrible news. Their twins were diagnosed with anencephaly, a severe condition that affects the development of a baby’s brain and skull. It’s a condition that often means the baby won’t survive long after birth.

The news was devastating for Millie and Louis. They had to prepare for something no parent should ever have to face. And when the day finally came, their worst fears were confirmed. They welcomed their twins into the world, but one of them, little Skye, passed away soon after birth.
Losing Skye was a pain like no other. But instead of letting their grief consume them, Millie and Louis decided to channel their pain into something positive. They wanted to help other parents who had to go through the same heartbreaking experience. That’s when the idea of the Purple Butterfly Initiative was born.

Creating the Purple Butterfly Initiative
To honor Skye’s memory and help other grieving families, Millie and Louis started a foundation called the Skye High Foundation. Their goal was simple yet powerful: to offer comfort and support to parents who have lost one or more babies during a multiple birth.
The idea of using purple butterfly stickers came from a moment Millie had in the hospital. While she was grieving for Skye, she overheard a visitor talking about her “twins” without realizing that one of her babies had passed away. The comment, although innocent, was like a knife to her heart. It made her realize that there needed to be a gentle, respectful way to let hospital staff and visitors know about such loss.

So, they introduced purple butterfly stickers in Neonatal Intensive Care Units (NICU) worldwide. These stickers are placed on incubators, cribs, or even hospital rooms to quietly communicate that a family has experienced the loss of a baby. It helps prevent unintentionally hurtful comments during an already difficult time.
What the Purple Butterfly Sticker Represents
The purple butterfly sticker has become a symbol of loss, love, and remembrance. It’s a way to honor the baby who didn’t survive while also providing kindness and understanding to grieving parents. It gently lets hospital staff and visitors know that their words and actions should be extra careful and compassionate.
Millie and Louis may not be able to change what happened to Skye, but they are determined to help others who are going through the same pain. Their initiative has grown, spreading to hospitals around the world. Many parents have found comfort in knowing that they are not alone and that there are people who understand their pain.
Creating Support Groups for Grieving Parents
Beyond the stickers, Millie and Louis have created support groups where parents can share their experiences and find comfort in each other’s stories. They understand that losing a child is something that stays with you forever. But having someone to talk to, someone who truly understands, can make the pain a little easier to bear.

They want grieving parents to feel seen, heard, and supported. As Millie explains, “Ultimately I will never be able to stop this from happening, but the more support groups we can set up and put things in place like the stickers, the better it will be. It’s the hardest thing anyone has to deal with.”
Making a Difference One Butterfly at a Time
The Skye High Foundation has brought hope and healing to many families. The purple butterfly stickers are now used in NICU units around the world, serving as a quiet reminder of the babies who were lost but will never be forgotten.
Millie and Louis’s dedication to their cause shows their incredible strength and kindness. They took their own pain and turned it into something beautiful and helpful. Their efforts are making a real difference, offering comfort to families who are dealing with the same heartbreaking loss.
Through their hard work and compassion, they have turned their grief into a powerful tool for healing. The purple butterflies are more than just stickers; they are symbols of love, remembrance, and kindness. They show that even in the darkest moments, there can be hope and understanding.
Continuing the Mission
Millie and Louis are committed to growing their initiative. They continue to create more support groups and spread awareness about the purple butterfly stickers. They want to make sure that no parent has to go through the pain of losing a child alone.
Their story is one of strength, love, and resilience. It shows that even in the face of terrible loss, something beautiful can emerge. Through the Purple Butterfly Initiative, Millie and Louis are changing lives for the better.

Their journey is proof that kindness and compassion can come from the most painful experiences. And while they will never forget Skye, they have ensured that her memory lives on through their mission to help others.
If you or someone you know has experienced this type of loss, remember you are not alone. Millie and Louis’s story is a testament to the power of love and community.
If you found this story touching, please share it with others. It’s through spreading awareness that we can all help make the world a more understanding and compassionate place.
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